I first read about it in an article in 2015 that reported on initial study results presented at the 67th Annual Association of Neurologists conference. The Biotin Protocol. Ooh, fancy!
Biotin is a form of vitamin B, and it plays an important role in energy production within cells. Researchers believe the compound has no anti-inflammatory action, and thus no effect on relapses, but that it treats disability by tackling neuronal loss
I thought at the time it was something interesting to watch and wanting to hedge my bets, I added a dose of the highest over-the-counter Biotin (which I thought was a big dose--10,000 mcg!) to my regular daily meds.
Eventually I started to see more articles reporting that researchers were testing high doses of industrial grade biotin in the UK and France. See here and here.
I looked up the actual "protocol" being studied: The protocol, created by the company MedDay Pharmaceuticals in France, tests high-doses of the vitamin Biotin (aka, vitamin B7). It is recommended that a patient take 300 MG of pure Biotin per day. The trial is attempting to show that high-dose biotin can reverse disability in non-active progressive MS.
I finally did the math and realized my over-the-counter efforts were way too low! So I bought more bottles and worked out a schedule where I took 10 pills three times a day just to see.
Will Get Rx
Reports said trials were set at 1 year which I know from personal experience might not be long enough.
I decided that if I was going to stay on this for say three or more years, I should talk to my neurologist and get a prescription.
In the meantime, I can report that even with my over-the-counter supply, two months in I seem to have better bladder control.
- MS Trial Alert: Investigators Recruiting for Study of High-Dose Biotin (MD1003) in Progressive MS | NMSS
- New Directions in MS Research: New Therapeutic Approaches | MSAA
- MedDay’s New Phase 3 Trial and Belief in Biotin’s Potential to Treat Progressive MS: An Interview with Dr. Frédéric Sedel | multiplesclerosisnewstoday.com
Nothing found here should be considered medical advice. Please consult your doctor before making any changes.